The story of Alzheimer’s Orange County (AlzOC) is told through the people impacted by our services, and the people who help make that impact possible. In this entry, we’re sharing the story of Tina and Gary.
Tina came for support with her husband in 2017, who at the time was experiencing Lewy body dementia (LBD). That same year, her mother moved into a care facility. In 2018, Gary came to AlzOC with his wife, who at the time had mild cognitive impairment (MCI). When Gary’s wife was later diagnosed with vascular dementia, he sought additional support. Tina and Gary eventually met through an Alzheimer’s care partner support group and developed a friendship by attending events with their spouses. These gatherings became a source of comfort and understanding, allowing them to build a meaningful bond through their shared experiences.
“The support group has been invaluable. I learned so much about the disease, what to expect and how to cope/respond,” said Gary.
Tina shared a similar sentiment on the value that comes from support groups.
“Learning how other people are coping with similar issues is super helpful. Also, the social aspect was very helpful for me because caregiving and a dementia diagnosis can make life in general feel very isolating. Getting out and sharing with others on the same journey is comforting,” Tina explained.
This time together at the support groups and events has created a strong bond between the two, based on the similar issues they faced. Gary and Tina’s experiences show the importance of connection and community when someone you care about is diagnosed with dementia. Help is always available. Even so, many are hesitant to seek support. Fear, lack of awareness and denial can all be reasons why people are hesitant to reach out, but the earlier you seek help the more options you have to find the support you need. Support groups are just one example.
“Join a support group. Try several to find a group that fits your style. I can highly recommend our support group – we meet at 10:00 a.m. every second and fourth Wednesday at the Oasis Senior Center in Corona del Mar,” Gary continued.
Tina also encourages others to find a support group that is a good fit for them.
“I highly encourage others to join a support group. I have learned so much from others who have been on the journey longer than I have. Like Gary mentioned, it’s good to try several support groups. I have gone to four different groups but find that the Oasis group is the best fit for me,”
The importance of seeking support cannot be overstated. When someone in the family experiences memory loss, it can feel overwhelming, isolating, and exhausting. Interacting with others with similar experiences can provide encouragement and hope, and much needed socialization that is useful on many levels.
As Gary put it, “Alzheimer’s OC has provided me with information and activities to help with dementia. I’ve heard that social activity and music are therapeutic to those with dementia.”
Inspired by his experience with AlzOC, Gary now hosts his own events for other care partners, including joining local clubs, attending musicals at community theatres and participating in other activities. To view the full list of available support groups, click here.
Remember, you are not alone in facing memory loss. AlzOC offers a variety of activities and programs that promote creativity and socialization, such as its signature art program, Memories in the Making® and Connect2Culture, a social engagement program that includes gatherings, dances, and other communal activities that help build support and understanding. Take care of yourself, your brain, and your loved one. Call our helpline at 844-373-4400 to find answers, guidance and get matched to the support that best fits your needs.
